Photo credit: GOMBERT, SIGRID/Science Photo Library/Getty Images
This is such a heartbreaking story. A deathly ill 7-year-old boy lies in a hospital, and his parents have been fighting to get a drug company to approve one of their medications for him under compassionate use. This means it is not available for purchase and has not been approved by the FDA — it’s considered experimental. However, the particular company in this case had initially refused to allow it, but after pleas from his parents and a media firestorm, they finally approved its use for the sick child.
Josh Hardy has survived four different cancer diagnoses during his short life, but after a bone marrow transplant, his body was invaded by a virus that has resulted in heart and kidney failure. His parents have been requesting for Chimerix, Inc. to allow compassionate use of their drug brincidofovir that has worked before on similar viruses. However, the company initially said that diverting time and money towards helping Hardy and other patients like him will increase the time it takes to get the drug approved and on the market, resulting in a huge controversy.
Hardy’s father says that without this medication, the boy doesn’t have any hope. But on the other side of the coin, the company has to protect its product and the patients that will be helped in the future. Often, when folks are approved for compassionate use, they are often in desperate situations and can experience many adverse medical events, which must be reported. This results in their being tied to the drug, whether or not the drug itself is the cause of such events. This may, in fact, prevent the drug from ever being approved. This was the reasoning behind their initial refusal to accommodate the boy.
The media backlash Chimerix, Inc. received was intense, and now they’ve designated a new trial run, with Hardy as its first patient. You have to wonder if the president, who had said that there was no way they’d change their mind, had a change of heart when he considered what he’d do if it were his own child.
Photo credit: Heleen Sitter/GettyImages
A three-year-old boy implores his mother for a cupcake, and everyone is up in arms because he argues, interrupts and calls his mother by her first name. Cute, or bad parenting?
Is this little boy a future lawyer, or a future juvenile delinquent? I think it’s unfair to judge a parent-child relationship based on one video… one three-minute snippet of their daily lives. She may have encouraged the argument for the video, which has subsequently garnered a ton of media attention.
However, much is being said about a few things. One — the child calls his mother by her first name. This is a huge no-no in many families. Many feel that it lacks respect when a child calls a parent by her first name. I have never experienced it myself, but in some families, it’s just the way they roll. Also, maybe the little boy was calling her by her first name in an attempt to be more convincing, or he was trying to manipulate her because it sounds funny and cute.
Another issue is the fact that he keeps arguing with her and seems to have the upper hand, even though she repeatedly says that she’s the adult and she’s not going to argue with him any more.
I admit, I found the video annoying and hard to watch. I don’t really care about the first-name business, but the fact that he keeps arguing really grates on my nerves. If she were truly trying to get him to mind her, she’d put the video camera down. That’s why I suspect that she was egging him on a bit.
But no, he doesn’t deserve a spanking — just more guidance, and less opportunity (or encouragement) to keep arguing with her.
Philip Wheeler, a linebacker for the Miami Dolphins, is upset at the reaction his girlfriend’s breastfeeding photo is receiving. The photo shows his girlfriend, a model named Ashley Nicole, pausing standing in her home nursing her little boy. The included caption reads, “Was on the way out the door but then mommy duty called… Everything stops for him! #breastisbest #natureisbeautiful.” She looks gorgeous and it’s really sweet to see her tiny baby at the breast. But as expected, not everyone appreciates maternal photos of innocent beauty like I do.
He spoke to TMZ Sports and wondered why his girlfriend isn’t getting the same love and respect Gisele Bundchen got after she uploaded a similar photo to Instagram recently. He also expressed a wish that everyone would “leave it alone.” I totally heard criticism for Bundchen as well during that time, which of course wasn’t deserved, but most of the media was very positive towards her. Most of the negativity came from random comments, which is what I’m assuming is happening now.
It’s an amazing photo. She appears to be leaving it up and I hope she continues to do so. Unfortunately there are people who feel powerful behind a computer or smartphone and say whatever ridiculous thing that pops in their head. But she seems to be a strong gal and has a supportive partner, so I hope she keeps it up.